Congresswoman Herrera's baby is first to survive Potter's Syndro - KPTV - FOX 12

Congresswoman Herrera's baby is first to survive Potter's Syndrome

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PORTLAND, OR (KPTV) -

Against all odds, Congresswoman Jaime Herrera Beutler's baby girl has survived Potter's Syndrome.

The infant is believed to be the first baby to survive the condition, which is associated with a deficiency in amniotic fluid in the womb and is considered deadly.

"With great joy, gratitude and hope, we are pleased to share with you the news of the birth of our daughter, Abigail Rose Beutler at Emanuel Legacy Hospital in Portland...she is every bit a miracle," Herrera Beutler and her husband wrote.

Two weeks ago, baby Abigail Rose Beutler entered the world with fully developed lungs, something that's nothing short of a miracle.

Though doctors say Abigail is doing well, her battle is far from over.

She was born without functioning kidneys.

She's now being treated at a children's hospital at Stanford University in California.

Throughout the entire ordeal, her parents had not given up hope.

While in utero, Abigail was diagnosed with Potter's Syndrome.

She had failed to develop kidneys, which led to an absence of amniotic fluid, which is critical to lung development.

Doctors told the Beutlers they had two options: termination, or wait for Abigail to die.

The Beutlers chose to pray for a miracle.

They found a group of doctors at Johns Hopkins who tried a treatment called amnioinfusion where saline was injected into Jamie's womb to give Abigail's lungs a chance to develop.

At 28 weeks, Abigail arrived early and immediately after she was born, she drew a breath and cried.

It was a sound that meant Abigail's lungs had developed and she could survive.

The next challenge: her lack of kidneys.

Shortly after birth, Abigail headed to California where she had surgery and began dialysis.

Doctors are happy to say she is active, stable and breathing on her own.

They're calling this an unprecedented case and are cautiously optimistic about her future.

Meanwhile, the Beutlers wrote, "We are grateful to the thousands who joined us in praying for a miracle. But most of all, we are grateful to god for hearing those prayers."

Abigail will require ongoing dialysis and eventually she will have to have a kidney transplant, but for now, the Beutlers say they have every expectation that she will lead a full and healthy life.

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