Portland 9-year-old fighting rare brain disease - KPTV - FOX 12

Portland 9-year-old fighting rare brain disease

Posted: Updated:
Carrie and John Miller are trying to raise money to their son Brody, who is fighting abnormal vascular malformation. (KPTV) Carrie and John Miller are trying to raise money to their son Brody, who is fighting abnormal vascular malformation. (KPTV)
PORTLAND, OR (KPTV) -

A 9-year-old boy from Portland battling a rare brain disease has been released from the hospital, and he's continuing his fight back at home.

Brody Miller is a fighter, and in the last 16 months has gone through eight brain surgeries.

His parents John and Carrie noticed a bump on his head when he was 4, but Carrie said doctors misdiagnosed it as a cyst.

Doctors told her not to worry about it, but four years later when they went to have it removed, surgeons had a hard time stopping the bleeding.

That was when they learned that the bump was a symptom of a rare brain disease called abnormal vascular malformation.

The condition causes Brody to have extra veins and blood vessels in his brain, and at times he feels like he has a constant migraine.

Some of his surgeries have taken a toll on him, but others he's been able to bounce back from quickly.

“My second one, I got up and they didn't even have to tell me, and I got up and started to walk,” Brody recalled.

While his family has good insurance, it doesn't cover everything.

“We've had to pay for shower equipment. We have to pay for tutoring out of pocket that's not covered. We have to pay for massage therapy that's not covered,” Carrie explained. “Anything to do to get him where he was is our goal.”

His family is hoping a GoFundMe account will help with his recovery. So far they've raised $2,500, half of their $5,000 goal.

Local archery company G4 Archery is auctioning off a Chris Kyle "Legend" bow valued at $1,100 to help the family. Anyone interested in the befit can visit the shop's Facebook page.

Copyright 2016 KPTV-KPDX Broadcasting Corporation. All rights reserved.

Powered by Frankly
FOX 12
Powered by WorldNow CNN
All content © 2017, KPTV-KPDX Broadcasting Corporation, Portland, OR . All Rights Reserved.
For more information on this site, please read our Privacy Policy, and Terms of Service, and Ad Choices.